Beacon for rare diseases

About Beacon for rare diseases

Beacon is a UK-based non-profit organisation that is building a united rare disease community with patient groups at its heart.

Our patient group trainings help these often small and voluntary organisations to form, grow, and professionalise. It is through our events and trainings that patient groups have the opportunity to connect and collaborate with others across the rare disease space.

At Beacon, we believe that no one should face their rare journey alone.

Recently added activities

New
Trustee Openings
Organisation role · 4–6 hrs/month · Starting from 1 Sept
Cambridge
Trustee Openings
As we enter an exciting new phase of development under a new Chair of Trustees, we are looking for Trustees who can bring fresh expertise to our board.Posted by Beacon for rare diseases

Photos